The National Psoriasis Foundation (NPF) is a dynamic and growing non-profit organization dedicated to research, advocacy, and patient and medical education. We work together toward a cure for psoriasis and psoriatic arthritis and to increase the lifespan and improve the health of individuals living with psoriatic disease.

The Director, Patient Centered Research represents a strongly positioned opportunity to guide extramural research and lead collaborative efforts that focus on NPF patient-centered programs and data. The Director’s work contributes fundamentally to NPF’s mission to cure psoriatic disease and improve the lives of those it affects.

The position’s primary role is to lead the Patient Centered Research program, leveraging research learnings to inform NPF activities and policies. The Patient Centered Research program currently focuses on rigorously applied survey methodologies and mixed methods approaches. The resultant NPF data has contributed to an average of 3-4 peer reviewed publications per year, offering the ideal candidate significant opportunity to participate in published scientific discourse.

The Director is expected to stay abreast of developments in the broader psoriatic disease research field. In addition to routine conference attendance and research collaborations, the position is expected to support and be familiar with the NPF extramural research grants and fellowships programs. These programs focus on close partnership with awardees to provide a supportive and flexible platform tailored to the understanding that research is a dynamic and iterative process.

The position is multi-faceted and requires management of multiple simultaneous projects and tasks, as well as frequent and on-going communications with colleagues, research awardees, patients, vendors, and other collaborators. This role involves combining a keen sense of scientific knowledge, strategy, and detail-oriented work.

The position will work closely with clinical and research advisors to inform, design, and conduct mission focused research programs in support of the organization’s strategic plan. The Director will work across the NPF to promote a culture of knowledgeable pride in the activities and outcomes of their work and the broader work of the Research and Medical Affairs department. The position is administratively supported by the Research and Medical Affairs Coordinator. The position benefits from strong collaboration with other NPF team members on matters related to scientific communication, data analysis, medical education, and both patient and clinician engagement strategies.

Responsibilities include:

Patient Centered Research Programs

• Responsible for oversight of all NPF stakeholder research surveys including the Annual survey, Advocacy survey, and management of additional survey data when required by special projects. The Director will manage survey development, implementation, and analysis with internal and external collaborators and vendors.
• Manage qualitative and mixed-methods design projects, when required. These currently include consensus methods related to the development of clinical recommendations, and development/initiation-style mixed-methods approaches to understanding and serving patient needs relative to culturally competent care.
• Contribute as an author on both scientific manuscripts and NPF materials, leveraging Patient Centered Research Program results.
• Maintain relevant IRB protocol and approvals related to Patient Centered Research.

Extramural Award Program

The Director is expected to support the extramural awards program and coordination of their peer review. In collaboration with CSMO, Research and Medical Affairs Coordinator, and relevant advisory committees, the Director will support review and selection of a robust and diverse portfolio of awards that align with the NPF strategic research priorities.

• Collaborate with CMSO, other staff, and volunteer advisory bodies in development of research funding strategy
• Support identification and recruitment of peer-review expertise required for appropriate review of proposals to the award program.
• Work with Research and Medical Affairs Coordinator to prepare notices of award and award contracts, and to review required deliverables.

Other

• Support CSMO and CEO in representing NPF interests in select external committees or advisory boards, providing presentations where required.
• Develop initiatives to maximize utilization of NPF patient centered research in other NPF programs. These include NPF advocacy programs, patient education, and the contribution of patient data and perspectives to NPF's medical affairs and medical education programs.
• Serve as subject matter expert within and outside of NPF. Develop and maintain familiarity with ongoing scientific progress related to psoriatic disease, incorporating a perspective of how NPF’s own research contributes to the broader goals of the field.
• Contribute to planning content and sourcing speakers for conferences and periodic workshops and retreats.
• Attend and represent NPF at national and international scientific meetings, presenting when required.
• Providing other members of NPF staff with scientific input and editing content for scientific accuracy and clarity.

Requirements include:

• Advanced degree in psychology, public health, or demonstration of equivalent relevant work experience.
• Professional experience should demonstrate aptitude in health-care related mixed-methods research including survey methodologies, protocol design and analysis.
• Familiarity with common statistical analysis packages (eg, SPSS, R, etc.) and research platforms (Redcap experience strongly preferred)
• Ability to convey scientific and technical information to a diverse group of audiences
• Ability to take initiative and learn quickly
• Attention to detail and accuracy
• Highly organized with an ability to meet deadlines
• Ability to manage multiple projects, priorities, and deadlines
• Excellent interpersonal skills and high-level professionalism
• Ability to work both independently and collaboratively
• Ability to travel
• Proficient in computer programs such as Word, Excel, PowerPoint

Application Instructions

Please forward a cover letter with salary requirements and your resume to: Human Resources, National Psoriasis Foundation, Link: https://www.psoriasis.org/about-us/jobs, E-mail hr@psoriasis.org.

Job Type: Full-time

Pay: $115,000.00 per year

Work Location: Remote